Table 1 Characteristics of participating caregivers and their care recipients (n = 93)
Characteristics | Value | Na |
|---|---|---|
Caregivers' socio-demographics | ||
Age, mean ± SD (range) | 62.9 ± 14.4 (32.5–91.2) | 87 |
Gender, female (%) | 71 | 93 |
Relation with the care recipient | 92 | |
Spouse | 41% | |
Child | 50% | |
Child in law | 4% | |
Other (friend, other member of the family) | 5% | |
Married (%) | 83 | 86 |
Widowed (%) | 1 | |
Living together with the care recipient (%) | 47 | 93 |
Months spent on caring, median (25th percentile, 75th percentile) | 24.0 (16.0, 48.0) | 63 |
Hours spent on caring a week, median (25th percentile, 75th percentile) | 7.0 (3.0, 41.0) | 65 |
Help from other persons/shared care (%) | 61 | 83 |
Educational level, primary school or no education (%) | 15 | 88 |
Caregivers' sense of competence | ||
Overall SCQ, mean ± SD (range) | 107.7 + 13.7 (65.9–132.0) | 93 |
Subscale 1. Satisfaction with one's own performance as a caregiver, mean ± SD (range) | 49.2 ± 6.5 (29.0–60.0) | 93 |
Subscale 2. Consequences of involvement in care for the personal life of the caregiver, mean ± SD (range) | 28.6 ± 6.2 (13.0–40.0) | 93 |
Subscale 3. Satisfaction with the care recipient, mean ± SD (range) | 29.9 ± 4.2 (16.0–35.0) | 93 |
Caregivers' general (health) functioning | ||
Self reported health, good, very good or excellent health (%) | 69 | 88 |
Chronic disease, one or more chronic diseases (%) | 67 | 88 |
Caregiver's burden, SPPIC, mean ± SD (range) | 3.5 ± 2.6 (0–9.0) | 82 |
Mastery, mastery, mean ± SD (range) | 25.3 ± 4.9 (16.0–35.0) | 85 |
Depressive symptoms, CES-D, mean ± SD (range) | 10.9 ± 6.9 (0–35.0) | 88 |
Mental quality of life, MCS of the SF-36, mean ± SD (range) | 49.5 ± 9.8 (23.6–68.1) | 88 |
Caregiver's distress associated with patient's neuropsychiatric symptoms, NPI-Q distress, mean ± SD (range) | 7.7 ± 8.3 (0–38.0) | 84 |
Patients | ||
Cognitive functioning, MMSE-score, mean ± SD (range) | 22.4 ± 4.0 (8–28) | 90 |
Months with symptoms, median (25th percentile, 75th percentile) | 26.0 (19.0, 48.0) | 65 |
Severity of neuropsychiatric symptoms, NPI-Q, mean ± SD (range) | 6.3 ± 5.6 (0–27.0) | 84 |
Initiative to perform self-care, IDDD, mean ± SD (range) | 11.9 ± 8.5 (0–32.0) | 82 |
Actual performance of self-care, IDDD, mean ± SD (range) | 13.7 ± 9.7 (0–40.0) | 84 |